Volunteer Network Has Track Record of Improving Trial Recruitment, Removing Research Roadblocks

Save Story
Leer en Español

Estimated read time: 3-4 minutes

This archived news story is available only for your personal, non-commercial use. Information in the story may be outdated or superseded by additional information. Reading or replaying the story in its archived form does not constitute a republication of the story.





Parkinson's Disease Foundation Calls Upon Research Professionals to

Engage Patient Advocates in Speeding Drug Development

NEW YORK, March 7, 2014 /PRNewswire-USNewswire/ -- The Parkinson's

Disease Foundation@ (PDF@) invites research professionals within

industry, academia and government, to partner with its trained patient

advocates to bring about better treatments for Parkinson's disease.

This week, PDF welcomes new members to its national network, which

now includes more than 230 Research Advocates whose insights are

critical to speeding drug development.

In the past five years, more than 400 research professionals have

engaged PDF Research Advocates in setting research priorities,

designing clinical trials and increasing study enrollment. These

partnerships have led to, among other outcomes, 700 people enrolling

in clinical studies to advance Parkinson's disease science.

This week, more than 30 people with Parkinson's disease and care

partners are undergoing training to join the network.

"I urge my colleagues in the field of Parkinson's disease research to

work with these unique individuals. It is incredibly effective," said

Claire Henchcliffe, M.D., D.Phil., faculty member for the program,

Director of the PDF Research Center at Weill Cornell Medical College,

and associate professor of neurology and neuroscience in the Feil

Family Brain and Mind Research Institute at Weill Cornell Medical

College in New York, NY. "In my experience, PDF Research Advocates

can enhance our work by bringing an understanding of what it means to

live with Parkinson's disease."

Linda M. Morgan, M.B.A., R.Ph., a PDF Research Advocate from

Asheville, NC, who also serves as a faculty member for the program,

added, "The community is increasingly recognizing the importance of

the patient's voice. We want research professionals to know that,

thanks to PDF's training and support, we are ready to hit the ground

running to improve trials and solve Parkinson's disease."

PDF invites research professionals in the field of Parkinson's disease

to contact us for information on partnering with PDF Research

Advocates by calling (800) 457-6676, emailing info@pdf.org or visiting


PDF invites people with Parkinson's disease and their loved ones to

get involved by completing its free Parkinson's Advocates in Research

online course at www.pdf.org/paironline.

About Parkinson's Disease Parkinson's disease is a progressive

neurological disorder that affects nearly one million people in the

US. Although promising research is being conducted, there is

currently no cure for Parkinson's disease.

About Parkinson's Advocates in Research As a signature program of

PDF, Parkinson's Advocates in Research (PAIR) is bringing together the

people who live with Parkinson's disease and the people who are

developing new therapies with one goal: better treatments at a faster

pace. Through in-person trainings and an online course, the PAIR

program provides people touched by Parkinson's disease with the skills

needed to pair up with scientists and health professionals. By

collaborating with research institutions, the PAIR program facilitates

partnerships between Research Advocates and professionals at the

frontlines of research. The cornerstone of the program is a national

network of more than 230 Research Advocates from 42 states who speed

drug development, increase trial participation and inform the

Parkinson's disease community about research. Learn more

at www.pdf.org/pair.

About Parkinson's Disease Foundation@ The Parkinson's Disease

Foundation@ (PDF@) is a leading national presence in Parkinson's

disease research, education and public advocacy. PDF is working for

the nearly one million people in the US who live with Parkinson's

disease by funding promising scientific research while supporting

people living with Parkinson's through educational programs and

services. Since its founding in 1957, PDF has dedicated over $100

million to fund the work of leading scientists throughout the world

and over $42 million to support national education and advocacy


Logo - http://photos.prnewswire.com/prnh/20111101/DC97663LOGO

SOURCE Parkinson's Disease Foundation

-0- 03/07/2014

/CONTACT: Melissa Barry, Director of Communications, (212) 923-4700 /mbarry@pdf.org

/Photo: http://photos.prnewswire.com/prnh/20111101/DC97663LOGO

PRN Photo Desk, photodesk@prnewswire.com

/Web Site: http://www.pdf.org

CO: Parkinson's Disease Foundation

ST: New York




-- DC79204 --

0000 03/07/2014 18:16:00 EDT http://www.prnewswire.com

Copyright © The Associated Press. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.

Most recent Business stories

Related topics

The Associated Press


    Get informative articles and interesting stories delivered to your inbox weekly. Subscribe to the KSL.com Trending 5.
    By subscribing, you acknowledge and agree to KSL.com's Terms of Use and Privacy Policy.

    KSL Weather Forecast