Carnival raises money for siblings with rare disease

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HOLLADAY -- Organizers of a special carnival in Holladay used food, music and fun to raise money and awareness for a rare disease.

Whit and Lindsey Coleman are the parents of two children with spinal muscular atrophy, or SMA. SMA is a rare, inherited disease characterized by muscle atrophy and loss of motor function.

Most children do not live past the age of two, but Jonas Coleman is almost three. His sister Maggie is six weeks old.

The money raised will help the Colemans provide their children with the best care possible.

"It's so nice to be supported but it's overwhelming to know this is for me, not for me but for my children," said Lindsey. "It's amazing. Words can't express what that means."

For information on Jonas Coleman and his family, including a way to donate* to SMA research, CLICK HERE.

The Colemans will also be guests on the Mormon Times with Kathy Aiken on KSL-TV Sunday morning at 10.


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